Abstract: ［Abstract］ Objective To investigate and analyze the effect of continuous nursing on patients and related nurses after high?grade glioma （HGG） surgery. Methods Between April 2016 to February 2018， 41 eligible HGG patients received a continuous nursing for 2 months after discharged.Assessment was by open discussion and a semi?structured questionnaire， together with the Quality of Life Assessment with Modified FACT O Scale. Objects of investigation were patients themselves and family caregiversand 45 family caregivers were also asked to complete a satisfaction questionnaire. Results Fourty?one patients and 45 family caregivers completed the survey. For general nursing advice， clinical nursing knowledge， management of adverse reactions and side effects， the most helpful ones were 82.9%， 87.8%， 58.4%， 61.0% （patients）， and 84.4%， 86.7%， 73.4%， 53.3% （family caregivers）. Continuous nursing was mainly reflected in the improvement of patients′ emotions. There is a significant difference in scores before and after intervention （P<0.05）. There were no significant differences in the scores of patients′ physiological status， social/family health and functional health before and after intervention （P>0.05）. In survey of patients′ satisfaction with continuing nursing， from 1 point “very poor” to 10 points “very excellent” series ranking， the number of people with 8 points was the largest. Psychological survey results of family caregivers were mainly reflected in anxiety/depression. Other factors were the increase of financial burden and the limitation of spiritual life. Conclusion Continuous nursing can improve their quality of life fordischarged patients with HGG.

Key words: nursing care, family caregiver, high?grade glioma

摘要： ［摘要］ 目的 调查和分析高级别胶质瘤（HGG）术后的延续性护理对患者与相关护理者的作用。方法 选择2012年4月~2018年2月间，41例符合条件的Ⅲ～Ⅳ级术后HGG患者和家庭护理人员，采取2月的延续性护理。延续性护理效果评估，采用改良FACT O量表评估患者生活质量。结果 41名患者和45名家庭护理者完成调查结论。对于护理的一般意见、提供的临床护理知识、不良反应及副作用处理方面，很有帮助的分别为：82.9%、87.8%、58.4%、61.0%（患者）；84.4%、86.7%、73.4%、53.3%（家庭护理者）。延续的护理对患者生活质量评估，表现在患者的情绪改善，在干预前、后的得分差异具有统计学意义（P<0.05）。患者的生理状态、社会/家庭健康和功能健康的得分在干预前后的变化没有统计学意义（P>0.05）。患者对延续性护理的满意度调查，从1分“很差”到10分“非常优秀”的系列排次，评8分人数最多。对家庭护理者心理调查结果主要反映在焦虑/抑郁，其它因素为经济负担增加和精神生活的限制。结论 对HGG患者术后的延续性护理有助提高患者的生活质量。

关键词: 护理, 高级别胶质瘤, 家庭