关键词: 护理, 高级别胶质瘤, 家庭

Abstract: ［Abstract］ Objective To investigate and analyze the effect of continuous nursing on patients and related nurses after high?grade glioma （HGG） surgery. Methods Between April 2016 to February 2018， 41 eligible HGG patients received a continuous nursing for 2 months after discharged.Assessment was by open discussion and a semi?structured questionnaire， together with the Quality of Life Assessment with Modified FACT O Scale. Objects of investigation were patients themselves and family caregiversand 45 family caregivers were also asked to complete a satisfaction questionnaire. Results Fourty?one patients and 45 family caregivers completed the survey. For general nursing advice， clinical nursing knowledge， management of adverse reactions and side effects， the most helpful ones were 82.9%， 87.8%， 58.4%， 61.0% （patients）， and 84.4%， 86.7%， 73.4%， 53.3% （family caregivers）. Continuous nursing was mainly reflected in the improvement of patients′ emotions. There is a significant difference in scores before and after intervention （P<0.05）. There were no significant differences in the scores of patients′ physiological status， social/family health and functional health before and after intervention （P>0.05）. In survey of patients′ satisfaction with continuing nursing， from 1 point “very poor” to 10 points “very excellent” series ranking， the number of people with 8 points was the largest. Psychological survey results of family caregivers were mainly reflected in anxiety/depression. Other factors were the increase of financial burden and the limitation of spiritual life. Conclusion Continuous nursing can improve their quality of life fordischarged patients with HGG.

Key words: nursing care, family caregiver, high?grade glioma